The Marrow Diary
I reached back with my
fist clenched and thrust it forward as hard as I could directly into
Josh’s upper arm. Overshadowed by the excitement of his turn,
the impact didn’t faze him. I closed my eyes, clenched my teeth,
and braced for impact. In retrospect I never should have agreed to play
with him, he was twice my size. But the dead arm game was a great way
to pass any school day. Over the next few days Josh refused to leave
my side so that he could show off the extent of the damage that I had
incurred from his fist. Personally, I didn’t mind the giant balls
of blues and blacks that decorated my arm. I thought of them as manly
battle wounds that would attract those females who were quite fond of
the blue-black color group. My M.D. father noticed the bruises along
with numerous other animated bruises that decorated other portions of
my body. To him, these bruises weren’t consistent with manly battle
wounds but rather symptomatic of a low platelet count. He threw me into
his car and whisked me through Chinatown to Boston’s theater district
where we had a date with a hematologist oncologist at The New England
Medical Center’s Floating Hospital for Children. It was then and
there that I was diagnosed with AML Leukemia. A few months later my older brother was
generous enough to bend over while a few doctors stuck giant needles
into the top of his butt to extract his bone marrow which happened to
match mine. And so, just one day before my 17th birthday I got an early
birthday present - Bone Marrow from my brother’s ass. The introduction
of new marrow into a human body causes new and different blood cells
to be made. Once the new marrow engrafts, the blood type of the recipient
changes to that of his or her donor’s. Often times Bone Marrow
Recipients pick up allergies and other immune system characteristics
that are native to their donor. It’s as if the old immune system
has been sentenced to death by radiation and chemotherapy because it
defiantly produced cancerous cells. It is then replaced by an obedient
immune system that is capable of following the laws governed by the
body and enforced by doctors. This remarkable physical makeover that
occurs in the bodies of those who receive bone marrow transplants (B.M.T.s)
in my opinion must be accompanied with psychological transformation.
It is no coincidence that B.M.T recipients, who are lucky enough to
survive their illnesses, often refer to the day of their transplant
as their second birthday. Survivors of the procedure often report feeling
like a new and different self. On July 5th 2000, my older brother, Dan
Ehrlich, donated his bone marrow to me, creating a new Nathan Ehrlich
whose birthday was moved back one day. This new Nathan is now 5 and a half years
old and has been in remission ever since. However, remission from my
initial illness was far from a complete remission of health problems.
Apparently, chemotherapy, radiation, and especially B.M.T.s cause a
few side effects that can, themselves, be fatal. Doctors who know how
to treat the resulting illness that always precipitates a B.M.T. –
Grafts Versus Host Disease (GVHD), must closely monitor every B.M.T.
patient. GVHD is the equivalent to a civil war that ensues in the body
in the aftermath of a B.M.T. The newly donated marrow attempts to target
and destroy the old immune system, which in turn tries to cling to life.
This process aggravates certain organs and can cause extreme irreversible
or fatal damage. I remained in the Boston area attending
Brandeis University, so that my doctors could keep my GVHD under control.
Additionally it would take several years for my new immune system to
be adequately effective. My body collected pneumonias, gathered sinus
infections, and garnered fevers that had to be cured with readmissions
to the Floating Hospital. Over the past five and half years of so called
remission, I have been in and out of hospitals, flown down to Johns
Hopkins for certain treatments, and laid up in bed from chronic headaches
& depression, while trying to maintain my life as a young American
college student. For those who have been fortunate enough
to survive the initial dangers of a B.M.T., there is little known about
the physical and mental prognosis, due to the procedure’s young
age. The unfortunate truth is that people who have been seriously ill
very often do not speak about the traumatic experiences of their illnesses.
They are left with feelings of shame, and or isolation, and therefore
feel uncomfortable talking about something that is deeply personal.
In addition those who are healthy often don’t want to be burdened
by sad traumatic stories that remind them of their own mortality. My health problems, which have hopefully by now become tired of tormenting me, although my full medicine cabinet indicates otherwise, have prompted me to combine my passion for filmmaking with my personal life. Using voice over narration, video diary entries, footage of current medical appointments, and still pictures from the days of my diagnosis and transplant, I will document my own personal experience as a B.M.T. patient. The remainder of the film will consist of interviews with other B.M.T. patients, and health care professionals, who both perform the procedure, and study its aftermath. In documenting this revolutionary procedure, this film will serve the public and medical community by addressing the physical and mental side effects of Bone Marrow Transplantation from the first person. Sincerely,
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